A Child with a Rare Disease Causing Hair Growth All Over the Body... Malay Royal Family Says "We Will Adopt"
Rare Genetic Disorder 'Jeonsin Damocheung'
Doctor Reveals Adoption of Malay Queen
A girl suffering from a rare disease that causes hair to grow all over the body, known as the so-called 'werewolf syndrome,' is reported to have been adopted by the Queen of Malaysia.
According to Asian media outlet The Straits Times on the 3rd, Tunku Azizah, the Queen of Malaysia, expressed her intention to adopt a girl named Miss Klein, who suffers from werewolf syndrome, during a visit to Sarawak state with King Abdullah last September.
The Queen said, "I want to ease the burden of caring for and raising Miss Klein," and also stated that she would support her tuition and medical expenses.
A Letter from the Queen of Malaysia Revealed by Miss Klein's Parents
[Image Source=Facebook]
Miss Klein suffers from 'congenital generalized hypertrichosis,' commonly known as werewolf syndrome. This rare genetic disorder causes hair to grow all over the body. Hair grows even in areas where body hair normally does not grow, such as the eyelids, forehead, and nose.
When Miss Klein was born, local doctors used various treatments, including shaving the hair on her face, but each time, her body hair grew back thicker.
As a result, Miss Klein currently has hair growing all over her body except for her palms and soles. Additionally, she was born without nostrils and had to be transferred to a larger hospital for surgery.
Miss Klein, who suffers from a rare disease that causes hair to grow all over the body [Image source=Facebook]
View original imageThe Queen sent a letter a month after meeting Miss Klein, expressing her wish to adopt her. Miss Klein’s mother, Teresa, posted the Queen’s letter on her Facebook, expressing gratitude and calling it a "great honor."
She also told her daughter, "You are truly lucky. Everything will be fine."
Her father, Roland, reportedly shed tears of joy after receiving the Queen’s letter, saying, "Our child has now become a princess. Our family experienced social stigma because of Miss Klein’s illness, but now she will be respected."
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Meanwhile, according to the Malaysian Rare Disease Association, there are fewer than 100 patients with generalized hypertrichosis worldwide.
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